Patience. I have four kids, I worked in the tourism industry, and I spent three years as a para-pro in an elementary school. I’ve never struggled to exhibit and extend patience to others. To OTHERS.
When the kids were little, patience was a necessity for us to successfully stumble our way through the days. Spilling juice on the floor while they poured themselves a cup at snack time? Well, first off…I could have poured it for them and the spill could have been avoided. And then, when the inevitable spill did happen…I could have gotten cross with them and shooed them out of the kitchen while I angrily cleaned it up myself. It would have been so much easier…and so much more efficient. But…what would I have modeled for them? Instead, I chose to let them learn to pour the juice themselves and I taught them how to “just shake it off” and simply clean up a mess if one did happen. Patience.
During the years that I had the privilege of serving as the Tour Director at Castle Farms, I know that I shared the same stories and anecdotes hundreds of times over. I explained and re-explained the charter-tour catering menu several times every day. I walked miles within the same halls and gardens each week of each season with our guests. And, I likely definitely answered the same questions thousands of times. But, I only needed to pause for the briefest of moments to be reminded that many of these guests were seeing this majestic place and hearing the fascinating stories for the first time. In this moment, I was magically transported back to my first visit. Patience.
For three years, from September through May, I got to spend my days tutoring and guiding amazing kiddos in their quests to master cutting and pasting, telling time and calculating change, fluid reading and engaging writing. Just as pouring the juice FOR my kids would have been easier and more efficient…pasting the shapes, counting the coins, and thumbing through the thesaurus FOR my students would have been the quicker, easier way out. But, again…what would that have modeled for them? Instead, success was achieved together…with glue-y fingers, miscalculated elapsed time, and eraser-marked rough drafts. Patience.
why not me…
While I seem to have wagonloads of patience for others…I, too often, lack the ability to extend this courtesy to me. Enter Parkinson’s. Parkinson’s Disease has introduced me to all kinds of lessons. Some of these lessons I am really ticked off about, but some of these lessons…the unexpected ones…I am learning to embrace. And, who knows? Maybe even do the homework.
Everything takes longer and is harder for me to do these days. Well, everything except scrambling eggs or putting sprinkles on the Christmas cookies. I can do these things better than anyone in my house. Because, you know…tremors. But, the other things…the everyday things…those are often challenging on even my best days. These days, I’m the one spilling the juice when I pour myself a glass. Random facts and silly stories that I’ve regaled for years randomly slip from my thoughts. Hallways and pathways I’ve walked on a regular basis are now scouted for tripping hazards or easier routes. And, counting change…? Forget about it. These days I just drop all the coins trying to get them into or out of my wallet.
I pick and choose my lunch options based on how steady my hands are…soup and anything that requires chopping…those things are saved for less shaky days. I’ve had to resort to mostly printing when writing by hand because my fingers and hand cannot consistently move smoothly enough for cursive. I’ve relented to one of those ginormous pill organizer thingies. Because, opening ten separate medication bottles first thing in the morning after spending all night off of my Parkinson’s meds, yeah…I may or may not have lost a pill or seventy-three to the bathroom floor and the sink drain. On the days when I do feel strong enough to run errands…I need to anticipate twice the amount of time it “should” take. And, for the impending icy parking lots of Northern Michigan winters…I will need to utilize the handicap placard my neurologist recommended.
unexpected…
Until my Parkinson’s Diagnosis, I would have had zero patience with myself for the kinds of obstacles I just shared with you. I would have, undeniably, had all the compassion, patience, and understanding in the world for someone else struggling. Someone else…but not me. But, these days…? These days…thanks to an unexpected lesson…Parkinson’s Disease has forced has taught is teaching me to practice patience. Patience with myself. But, dang…why is this lesson taking so long?
I will get there. I am getting there. I am slowly learning. Learning for me. Learning to show a little grace. To demand a little compassion. To practice a little patience.
Wow. You brought tears to my eyes. What a beautiful way to look at life, to be patient with yourself. A lesson we can all use. I am so sorry you are having to go through this, but just by reading this post, I can see you have a gift to help others face the same type of challenge you are facing. You will help so many.
Awww…you’re so sweet, Jenny.
The thought of my journaling possibly helping others is a blessing I could not have imagined.
Thank you for reaching out!
Thank you so much for sharing your message. Kudos from you for being patient with yourself and giving yourself grace during this time. You are an inspiration, Nikki!
Thank you for such kind words, Nikki.
I appreciate the time you took to read and reach out!
Nikki, I thoroughly enjoyed reading your blog. You definitely have an engaging positive attitude and your outlook on life is so refreshing. Many who face challenges like you turn inside of themselves and become depressed whereas you, looked your disease right in the face and would allow it to defeat you! I applaud you on this blogging journey. I started my blog a little over a year ago and find it so rewarding. Will gladly subscribe. Would love to you to join my ‘Achieving Happiness’ Facebook Group – it is public if interested. Many blessings to you.
I just reread this wonderful blog today and saw my reply. I want to make clear that I ‘meant to say’ was that ‘you looked your disease right in the face and would NOT allow it to defeat you! Loved reading a second time. Many blessings.
Thank you, Beth, for taking the time to read my blog and reach out.
I knew what you meant, but it is so sweet of you to make sure.
I just joined your group…thank you for the invitation!
Beautifully expressed. I believe you have found a greater purpose in life…not by choice but by determination to face your beast head on and help others face theirs.
Thank you for your kind words, Jan!
You are always so thoughtful in your support.